St. Jude Visit

Sorry we haven't posted on our blog in a long while!!  Most everyone seems to prefer the Helping Hands 4 Morgan facebook page.  I have had a few requests for updates here on the blog so I promise I will try to keep this site updated as well.

 

Tumor is STABLE and eye surgery went well!! At almost 5 years past diagnosis and only 7 1/2 years old, unbelievably, Morgan is now considered to be a "long term survivor"! One of the nurses taking blood actually referred to her as an "old timer"! To hear these words used about our little miracle child is just surreal in so many ways! We can't say it enough, thank you St. Jude Children's Research Hospital for taking such phenomenal care of Morgan and helping her defy the o...dds, we are so very grateful!!

Morgan's right eye turning inward was what allowed us to get Morgan diagnosed so early and while the radiation greatly helped her eye, it has never been 100% since diagnosis. Unbelievably, she actually has perfect vision but her alignment has always been off and she has always had to compensate, sometimes experiencing double vision. She had some corrective surgery on Tuesday and we are hoping that it helps her eye to be more "normal". Will take a good 6-8 weeks for it to be completely healed but we are really hoping it helps her stop seeing double, especially at school.

 

Getting ready for MRI

 

Always have to get a picture with Danny Thomas!

Our favorite nurse Ms. Lou, we refer to her as our St. Jude mom. No matter what, she always makes time to hang with us after she gets off work, we love Ms. Lou!!

 

Post Eye Surgery :(

 

Being a little camera shy with her eye.

 

One-Eyed Willy finally came to life, ARGH! :)