STABLE!!!

Morgan and Adam are headed home from St. Jude with the wonderful news that Morgan's tumor remains stable!!!  Kindergarten here she comes!!!!! :)

STABLE!

Keeping this post short and sweet.  Morgan and Adam were down at St. Jude and her MRI showed that her tumor remains STABLE!!!



Wyatt Emerson West
April 2, 2014

I haven't been keeping up with my blog as much as the Helping Hands 4 Morgan facebook site so for those of you that don't follow facebook, here is a picture of the newest member of our family!  :)

Gold Coast Cares for St. Jude

On Saturday, March 15, 2014, over 300 guests gathered at Oheka Castle for the 2nd Annual Gold Coast Cares for St. Jude event. Together, the Long Island community raised over $300,000 for the kids of St. Jude.

We were so happy to have my brother Bill and his wife Marissa and Adam's sister Erin come with us this year. We had a wonderful time and were honored to be apart of such a special evening! Thank you Gold Coast and everyone at ALSAC for everything you do for the families of St. Jude!

 

 

 

 

 

HAPPY 5TH BIRTHDAY MORGAN!

Had a GREAT day today with our little girl on her 5th Birthday!  Celebrated with her classmates at preschool this morning, lunch at Applebees, some fun at Safari Adventure with her best friend and big sister, Hunter, and we ended the day with a yummy snowman ice cream cake.  Morgan is super excited for the weekend when she will have a Frozen (both girls are obsessed with this Disney movie)themed party with all of her girlfriends from school and all of her cousins.  Couldn't have asked for a nicer day!!

MRI Results

At St. Jude Children's Research Hospital and Morgan's tumor remains stable! Got port removed too which means less needle sticks and less anxiety for her! At this point they can't give us any insight as to what is to come, Morgan's survival is as rare as her tumor itself, we will take it one visit/one MRI at a time. She's a fighter and we are so very proud of her! Last trip for me before the baby in April, Adam and Morgan won't have to come again till may. We are beyond excited when we get back to be celebrating her 5th Birthday on the 11th!!

MRI Update

Adam and Morgan were down at St. Jude the end of last week for yet another MRI and Morgan's tumor remains stable!! This was her first MRI since coming off her chemo (study drug) in October so we couldn't be happier! All her blood counts came way up too since stopping the drug which means she can come off her very last pill that she was taking. She is officially drug free! She's fighting this tumor with everything she's got and we are just so proud of her!  She is a walking miracle, we have so very much to be thankful for this holiday season!  We'll head back down the beginning of February.




Morgan is officially on the Chili's Menu!

Morgan is officially on the menu at Chili's Nationwide! Although, each Chili's restaurant menu selection will depend if they finished up their last batch but I'm thinking most Chili's should have the one with Morgan by now. For all of us North Forkers, I do know that the Chili's right off exit 62 on the LIE has them in!