Sunday, July 31, 2016

St. Jude Visit

Sorry we haven't posted on our blog in a long while!!  Most everyone seems to prefer the Helping Hands 4 Morgan facebook page.  I have had a few requests for updates here on the blog so I promise I will try to keep this site updated as well.
Tumor is STABLE and eye surgery went well!! At almost 5 years past diagnosis and only 7 1/2 years old, unbelievably, Morgan is now considered to be a "long term survivor"! One of the nurses taking blood actually referred to her as an "old timer"! To hear these words used about our little miracle child is just surreal in so many ways! We can't say it enough, thank you St. Jude Children's Research Hospital for taking such phenomenal care of Morgan and helping her defy the, we are so very grateful!!
Morgan's right eye turning inward was what allowed us to get Morgan diagnosed so early and while the radiation greatly helped her eye, it has never been 100% since diagnosis. Unbelievably, she actually has perfect vision but her alignment has always been off and she has always had to compensate, sometimes experiencing double vision. She had some corrective surgery on Tuesday and we are hoping that it helps her eye to be more "normal". Will take a good 6-8 weeks for it to be completely healed but we are really hoping it helps her stop seeing double, especially at school.
Getting ready for MRI
Always have to get a picture with Danny Thomas!
Our favorite nurse Ms. Lou, we refer to her as our St. Jude mom. No matter what, she always makes time to hang with us after she gets off work, we love Ms. Lou!!
Post Eye Surgery :(
Being a little camera shy with her eye.
One-Eyed Willy finally came to life, ARGH! :)

Friday, July 24, 2015

St. Jude Walk/Run To End Childhood Cancer

The annual St. Jude Give Thanks Walk has changed to the St. Jude Walk/Run to End Childhood Cancer and will be held on Saturday, September 26, 2015 at the Bethpage Ballpark in Central Islip. We have signed up our Helping Hands 4 Morgan team once again and are beyond excited to fundraise for this amazing Hospital! I will also be sending out a link to a custom ink booster page where you can purchase a Helping Hands 4 Morgan t-shirt. All the profits from the t-shirt sales will go directly to our Walk goal to help the kids of St. Jude! Once I launch the booster, it will run till August 23 and t-shirt orders will be mailed out about 10 days after the end date. If you have any questions about the walk or the t-shirts, please don't hesitate to ask!

Thursday, April 2, 2015

Gold Coast Cares for St. Jude

We attended the annual Gold Coast Cares for St. Jude at Oheka Castle on March 14th and they raised nearly $300,000 for the kids of St. Jude Children's Research Hospital! Thank you to all our friends at ALSAC NY/NJ for putting together such a beautiful event and to everyone that donated to this extraordinary hospital!! It was extra fun for us because this was the first year that Morgan was able to stay awake long enough to enjoy herself! She even got in an extra special Daddy/Daughter dance!

Monday, March 9, 2015


Scans came back STABLE! Against all odds, our little miracle continues to do well! Doctor said that we can start spacing out her visits a little more so her next trip will be sometime in August before school starts up again. Every time she goes for scans we hold our breathe. Hearing the words "stable" and "no growth" come out of the Doctors mouth is such an incredible relief and reminds us how lucky we really are and to cherish every day we have with her and, of course, Hunter and Wyatt too! So very thankful to St. Jude Children's Reseach Hospital!! Special thanks to Mrs. Baldwin for allowing Morgan to take Mr. Bear, again!

Wednesday, February 18, 2015

Thank you!

Thank you, Joelle Daddino, for such a wonderful surprise, it was so very touching! Thank you, Lisa Finn, for taking such an interest in Morgan's story and writing such a nice article! Thank you to everyone that helped make this happen, so very proud to be apart of this extraordinary community!!!!

Southold Local - Reader donates her local prize to little girl battling brain tumor

Wednesday, February 11, 2015


                                                          HAPPY BIRTHDAY!
               We love you to the moon and stars and back, you are our hero!!!