We recently returned from a Walt Disney World vacation of a lifetime!! We're waiting for our Disney photopass pictures to come in the mail and we have about 1500 pictures of our own so as soon as we sort through them all we will be sure to post some of our favorites. The highlight of the trip was meeting all the Disney characters! Both Hunter & Morgan each filled up an entire autograph book and about a 1/4 of a second. It became an obsession and thanks to a special pass that allowed us to jump to the front of almost any line we we were able to see just about every one. We even had breakfast with the characters at Chef Mickey's, The Hundred Acre Wood, and at Cinderella's Castle. It truly is a special place and the kids just LOVED being there. To see the joy and happiness in their faces everyday brought us to tears. Hunter even lost her very first tooth on line with Daddy at the Pirates of the Caribbean ride! We have the most wonderful memories, it was a vacation like no other. Thank you to Make-A-Wish and Give Kids the World for an absolutely "MAGICAL" week at Disney World!
Disney was a really nice escape from reality but unfortunately we had a rude awakending coming home and had to bring Morgan to the ER at LIJ the very next day. She started to develop a nasty cough at the very end of the trip but somehow held out till we got home before she became very sick. Her blood work came back ok but a chest xray showed what could have been the beginning of walking pneumonia. After a week of much needed rest and with the help of some antibiotics she is feeling much better. We will be heading to St. Jude next week for Morgan's 2nd MRI since her treatment.
We celebrated Morgan's 3rd Birthday today with her very first manicure/pedicure & of course pink cupcakes!!
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| Happy 3rd Birthday! |
We went down to St. Jude for a quick follow up (just a check-up not an MRI) to Morgan's last visit in which we found out she had a significant amount of swelling in the area around the tumor. It was enough swelling that we actually could not see if the tumor itself had shrunk or even remained stable & was causing her once stable left eye to occassionally turn in just as her right eye had done back in September. Her doctor put her on a low dose steroid, in hopes to reduce the swelling, but we were concerned nonetheless. With the help of the steroid her eye movement is doing much better & she even gained a pound! On the down side, the steroid has been giving her tummy aches & more recently causing a lot of restlessness at night so they decided to cut down on her steroid dosage. Morgan is still swallowing all her pills like a champion and is as strong willed and stubborn as ever! We are more than anxious for our next MRI at the end of February but in the mean time we are looking forward to our Disney trip coming up!
Just in case anyone had not read our thank you letter we had put in the Suffolk Times at the end of December we are posting a link on the right hand side under the Helping Hands 4 Morgan Fundraiser Links. We just want to be sure that you all know just how much your love and support has meant to us!
